for families facing terminal illness

Finley's Story

About

Finley was born just before Christmas 2013 to Larkfield couple Mike and Sarah, a little brother for Alfie. Soon after he was born, it was discovered Finley had Group B streptococcal Meningitis. His parents made the heart-breaking decision to switch off his ventilator, but he rallied.

The Challenges

Doctors said Finley would only survive for a couple of weeks, so the couple asked if they could take him home to understand ‘what home is’. With the help of ellenor, the family achieved this. ellenor nurses visited every day at the beginning and were on call 24/7.  

How We're Helping

As the weeks went by, ellenor nurses were on hand when Finley had seizures, supporting the family at home or in hospital, and they created a care plan for Finley – so the family and medical team knew what to do. When Finley has a seizure, an ellenor nurse will stay with the family until he is settled again.

Supporting the whole family

ellenor respite carers come to Finley’s home for four hours a week to give Sarah a break, while the team also supports with one-off sessions, which enabled both parents to see Alfie in a play. Alfie has received play therapy and Mike and Sarah have had counselling.

"ellenor continues to be part of our family"

--Mike, Finley's Dad

The Future

Two years down the track, Finley has started at a local nursery – a milestone which the couple could never have imagined that their little boy would reach. “ellenor nurses have been so helpful with this new adventure for Finley,” says Sarah. “They went to every meeting with potential nurseries. Together, we found one and an ellenor nurse went out to meet the team there and give them seizure medication training.”