We offer a seamless service of care for babies, children and young people with life-limiting and life-threatening conditions to receive care in their and their families’ place of choice, which is overwhelmingly their own home. We work closely with a variety of care providers to deliver chemotherapy, palliative care and end of life care; 24 hours a day, for 365 days a year. In the event of urgent issues, families are able to access our on-call service.
Our Nurses help families get to grips with more than symptom management; by making sense of complex medication, assisting with co-ordinating hospital appointments and discussing care needs with other clinicians where necessary. Taking care of some of the day-to-day admin frees up quality time for our families.
We support children receiving chemotherapy in their own homes - this can reduce the need for hospital visits enabling the child to remain around their families at a difficult time.
We offer short breaks and respite to children, as well as various pre and post bereavement support for the whole family. A Short Break is fun for the child, and the siblings, and can free up some special time for the family and carers. We have a number of group respite and short breaks for patients and siblings including our ‘Friday Fun Club’ for under 5s and ‘Junior Kids’ for five to 10 year olds.
Our regular Family Drop-Ins, held during school holidays, give parents and carers a chance to meet other families, to exchange experiences and share some mutual support and fun. Our children and their siblings enjoy games, activities and the occasional special visitor, and our team is always at hand to offer support, care and guidance.
ellenor works with other voluntary sector organisations to enable our young people to fully participate in their local communities, and support those in the process of transitioning to adult services